Teresa last week sponsored an event held by the Nystagmus Network in the House of Commons as part of their campaign to increase awareness of the eye condition.
The MPs drop-in session, held on Wednesday 22nd January 2014, provided MPs from across the political spectrum the opportunity to speak with representatives from the Nystagmus Network and learn more about the condition. At the event, MPs pledged to write to their local GPs, Clinical Commissioning Groups (CCGs), and local councils in order to make enquiries about the information and support giving to patients during testing, diagnosis and treatment.
Nystagmus causes continuous, uncontrolled to-and-fro movement of the eyes, with most patients experiencing reduced vision. The movements may be in any direction, meaning that the eyes will look like they are moving from side to side, up and down, or even in circles.
Teresa, whose partner and grandson have Nystagmus, said:
“I am pleased that so many MPs attended this event in the Commons and have pledged to write to their local GPs, Clinical Commissioning Groups (CCGs), and local councils as part of the Nystagmus Network’s campaign to increase awareness of this condition. Nystagmus affects a lot of people, but very few people know much about it, and often what they do know is not accurate.
What was clear from the event was that only by increasing understanding of the causes, symptoms, and treatment of this condition will people with Nystagmus receive the support and assistance they need to reach their full potential. I commend the Nystagmus Network for all the work they are doing to raise awareness of Nystagmus and for a very successful start to their campaign.”